This is intended to serve as a written history of my everyday struggles with squamous cell carcinoma that originated on my tongue and spread from there.
Thursday, August 15, 2013
Blah!
We have officially less than one week until I am finished! Only 4 more treatments and I can ring my bell and move on with my life. I am really starting to drag these last few days and I can only imagine that it is going to get worse. Complete lack of energy and where I do have feeling on my upper shoulder/neck/head area, the radiation is seriously burning my skin. It also severely stiffens the muscles of my neck, so movement is a little more difficult and slow. My radiation treatment shortened by about 5 minutes this morning when they cut out the final electron step. I am also not sure if it is from the platelet loss or one of the many other aspects of my blood that are out of whack, but I am cold all the time. It actually is kind of a useful trait to have here in Houston right now since we are approaching solar surface temperatures these days. I am still finding it increasingly difficult to make myself eat. Something about the mechanics of it are bothering me, but I can' exactly tell what it is. Maybe it is because my tongue is swollen and hurts a bit when I have to use it to move food around to chew it. Whatever it is, it is becoming more difficult. I am still eating, though and hopefully things will start getting better in a couple of weeks. Jessica is doing an awesome job of making things that are easy for me to eat and that don't have anything too offensive in it so I can keep getting something in me every night. It also gets harder and harder every day to force down the water and I have started trying to add in some decaffeinated iced tea so that I have at least something else that I can drink. Intensely sweet things now taste horrific to me. I tried a sip of root beer the other day and it was disgusting. That and cream cheese icing are the two things thus far that the taste has changed for the worse. I can still power down a chocolate milk shake like a champ, so there is still hope. My picture today is of a hairless bear and gives some insight in to how I feel out in the everyday world without my beard. Just as bears should be covered with a magnificent coat of hair, so too should my face be covered with a spectacular display of hairy goodness. Without it, we both look out of place, disturbing and completely unnatural.
That hairless bear looks creepy, you however look like a refined gentleman. No fear, the beard shall return!
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